For Patients and Families

For Patients and Families

While this website is primarily for use by health care professionals and clinical researchers, we welcome your interest in the PRCSG and would like to direct your attention to some useful information provided by trusted organizations.
Patient Information

ACR Patient Education Materials
Information on rheumatic diseases from the American College of Rheumatology.

Helpful Links from the Arthritis Foundation
These links contain helpful information on medical, educational and other resources.

Approved Medication

FDA approved products and medication guides
Medication Guides are paper handouts that come with many prescription medicines and are specific to particular drugs and drug classes to address specific issues. This information can help avoid serious adverse events.

Patient Advocacy Groups

The Arthritis Foundation
The Arthritis Foundation is the only national not-for-profit organization that supports the more than 100 types of arthritis and related conditions with advocacy, programs, services and research.

Lupus Foundation of America
The Lupus Foundation of America works to improve the quality of life for all people affected by lupus.

Clinical Trial Information

We are grateful to all of the patients and their families who have already participated in PRCSG supported clinical trials. Only with the generous donation of their time for clinical research can safe and effective medication become available for children with rheumatic diseases worldwide.

If you are interested in participating in clinical trials or would like to learn more about current PRCSG studies, please send us an email.

Understanding Clinical Trials
A useful link for explaining the basics of clinical trials.

Clinicaltrials.gov

ClinicalTrials.gov is a registry of federally and privately supported clinical trials conducted in the United States and around the world. It gives you information about a trial’s purpose, who may participate, locations, and who to contact for more details.

Human Research Informational Videos

Short videos explaining the different types of research and information to help you decide to participate.